Frustration

The RSD syptoms have continue to spread throughout Peters body. He has difficulty walking. Especially outside of the house. The only place we actually go now is to Kroger. We went out to eat last night, and he had difficulty completing dinner because he had a pain attack whicle we were eating. I ordered him a double shot of Vodka to help him relax. It's very embarassing for him, and he's handling it so well. I have to get out of bed in the morning, when Kyle leaves for school, because Peter's sleep is so restless, it keeps me awake. I have to help him in the shower, and yesterday it was bad, with I have to life his legs out over the edge of the tub. I'm sure they would't change the tub layout, but it sure would help. Peter still doesn'thave insurance, but yeaterday the Lawyer gave us some pgone numbers to call. Disability hasn't responded yet. I don't know what they are waiting for? This is seriously neglect. If he was a child, they would have the state take care of him. I can't believe that our government neglects people like my husband who need help. Our lives are only going to progressivly get more difficult. The main problem that continues is the inability to ge medication. Peter only has just a little bit of two medications, one for sleep and one for pain. They are not effective, and make him quite disoriented.
We were able to make an appointment finally, with a DR in Nashville, that agreed to see him. They will take a sliding fee based on our income. The stimulator representative will meet us there. This way they can reprogram the unit to reach other parts of his body that he needs releif. They also discussed putting another unit, and a morphine unit in his back. I really don't know what will happen, but discussing the avalialible options is the first thing.
What he really needs is a miracle. I realize that our government doesn't make these, so the best thing they could do is provide us with financial assistance to help get through this. I am making it along pretty weel, being a spouse responsible for five people on one income. Peter is just able to function in the 1000 sf. living space of our apartment. These daily living things that he can do around the house, are the most of what he can do. No one understands. Not unless you have walked in his shoes will you understand. The best way for someone to help, is to help make his, and our familys life just alittle more comfortable. Pain releif starts with better accessable health care, and madication. This is something that is essential. I can't believe that our country has overlooked such an important part of our lives. We are being neglected, and so are so many Americans. It's inhumane treatment.